After
Holly Robinson Peete's oldest son RJ was diagnosed with autism, she and husband Rodney expanded the work of their foundation for Parkinson's disease to help individuals and their families whose children have the disorder.
Autism "can decimate families physically, emotionally, financially and spiritually,'' says the Web site for
hollyrod4kids initiative. And the number of children affected by the disease continues to grow, according to a report released recently by the
Centers for Disease Control and Prevention.
About 1 in 100 children have autism, the new figures report. That's a slight jump from a 1 in 110 estimate released by the Centers for Disease Control in the fall.
The increase may be the result of the work of health care professionals and activists, like Peete, who have pushed for early screening of children, arguing that the sooner it's caught, the better children respond to therapy.
When Peete began seeking information for her son in the 1990s, there was an information desert, she told AOL Black Voices in August. No one, including health care professionals, knew much about the disease, which prompted Peete to include autism in her work at the
Hollyrod Foundation, which she originally established to raise awareness about Parkinson's.
"If you don't have the resources to take care of your loved one or child with autism, you miss out on a lot of opportunities to help them get better and live a great quality of life,''
Peete said. "We see so many people struggling just to get by day to day. That's why it's been our mission to peddle a little corny thing called hope.''
Doctors are still trying to determine the cause of the disorder, which is diagnosed by observing a child's behavior, among other things.
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Holly Robinson Peete on Motherhood & Autism
Holly Robinson Peete candidly reveals her take on the link between autism and vaccinations, how to keep sane as a working mother, and her public fallout with actress Amanda Peet.
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Comments: (9)
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By: RENEE' on 1/03/2010 7:31PM
Why is it that many in the African-American community do not discuss Autism? We need to bring it out in the open and not be ashamed. With more children having it more should be done to find a cure. God Bless You Mr. and Mrs. Peete.
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By: char on 1/04/2010 12:25PM
Many of us in the Black community do not discuss autism because we don't know what it is exactly. Autism has such a vast spectum of indicators. Children can range from mild autisim (Aspergers),showing signs social inept to severe autisim, where the child in low functioning and/or non verbal. As of now, there is no cure for autism; it's a social dificiency. There is so much to learn about this disability.
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By: Annie Warnock on 1/03/2010 11:17PM
My grandson is 10 years old.My daughter and I noticed that he changed after taking his rubella vacination when he was a baby.
He went from being a smiling communicative baby to one who wouldn't make eye contact or respond to us calling his name.
He was finally diagnosed at 4 years old after a lot of urging from me and us pestering the doctor that something was wrong.
He has made great improvement but he is almost non-verbal.We have hope that he will speak in sentences and we will not give up.
You have to be an advocate for your child and never stop looking for ways to help them. No two autistic children are alike si it is up to family members to find the help that is right for their child. We can do it.
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By: Kathleen Davis on 1/04/2010 9:45AM
I get so frustrated being an African American Speech Pathologist with 25 years experience working with Autism. I have relatives that have decided to hide their child from me because I suggested he could be autistic. The suggestion did not even mention the word "autism". They are hiding and getting him help because they don't want the family to know and they feel if I see him, I will know and tell others! I just want to help him like I help all the other families I work with. This is family!
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By: Charleton Smith on 1/04/2010 2:36PM
Kathleen,
My name is Charleto Smith I have son Marcus who has autism. We live in Denver, CO and are looking for a speech therapist who works with kids with autism. Please let me know if you have any suggestion. Thank you in advance Charleton.smith@anthem.com
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By: Gloria on 1/04/2010 9:02AM
You are absolutely right. Many concerns regarding the Black Community is not discuss, and therefore looked upon as 1. Oh he/she is acting out . They will grow out of it 3. There is not wrong with my child/children 4. This doesn't happen in the BC, only in others ~ ACCEPTANCE that the keep, SHAME Is covered. Again agree with you entire post. Peace
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By: Derrick on 1/15/2010 12:25PM
Hyperbaric Oxygen Therapy is a therapy that has been helpful for some with Autism. More information can be found on these sites -
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http://www.hyperbaricsaltlake.wordpress.com
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